Health café Resources Meeting places Live library Storytellers Self help groups Heart s house Volunteers Health coaches Learning café Recovery Health café project Focus on support to people with chronic diseases and their families health and wellness live life,maintaining autonomy support and hope through conversations with other people with patient experience 1
Overall goals for health cafés How good: Increase the proportion of people who have a higher confidence in their own ability to handle their daily lives with a focus on health and well-being By when: december 2018 For whom: For persons with chronic diseases and their related persons who participated in any of the activities Status Spread and improvement of the meeting places We work together with patient organizations. with people from health care with organizations in the community We have to work more with different communication strategies We will give more training for our volunteers and people in live library Spread in whole region We have to find good measurement 2
Live library What is live library? Can you lend a person? Who? Someone whith experiences from health care. Or relative to a person with experiences from health care. Someone who wants to contribute whith his or her experiences. How? Someone from a clinic asks for a person- we look into the library and look for a person with right profile. We ask the person who says yes or no. We arranges contact between the clinic and the person 3
When? Improvement work Processwork Learning café Storytelling Risk asessment Meeting with other patients Clinic days mentors Volunteers How to do? Invitation Interest Interview Ready for "lending" Question "Match" based on the person's profile and opportunities 4
Invitation Do you want to contribute to improve health care? Do you want to share your experiences? Intresset är stort i hälso-och sjukvårdens olika verksamheter att ta del av erfarenheter och idéer från erfarna patienter och närstående. Patientlagen syftar till att stärka och tydliggöra patientens ställning och främja delaktighet och självbestämmande. Här kan vi bli bättre. Det finns behov av att öka samverkan på flera olika nivåer. Vill du dela med dig av dina erfarenheter av att vara patient eller närstående? Har du tankar om hur hälso- och sjukvården planeras och genomförs och hur hälso- och sjukvården kan bli bättre? Då vill vi gärna ha din hjälp. Vi har i regionen skapat ett Levande bibliotek som fylls av personer som är beredda att bidra på olika sätt. Vill du också vara med? Vi behöver dina erfarenheter i flera olika sammanhang. Några exempel: Erfaren patient eller närstående i Lärcafé. Ingå i ett förbättringsteam tillsammans med medarbetare Volontär i Hjärtats hus. Bollplank till Esthercoacher. Berätta din berättelse för vårdens medarbetare M.m. Omfattningen på medverkan avgör du helt och hållet själv. Du förbinder dig inte att vara tillgänglig vid vissa tider. Men, det ger oss i hälso-och sjukvården möjlighet att ställa frågan till dig om du har rätt profil för behovet. Verkar det intressant? Om du tycker det vill vi gärna ha en kontakt för att prata vidare. Lämna dina kontaktuppgifter och vad du skulle vilja bidra med så hör vi av oss. Interwiew questions Who are you? Driving forces? Experiences from health care from working life and community life? Which assignments may be relevant? Extent? Language skills? Special needs? 5
Check list live library prior to request for patient / close relative involvement Clinic Time and place: The assignment is valid: Expectations on the participant: The participant is offered: Contact: 1. Why are we focusing on patient involvement? 2. What are our overall goals for patient involvement? 3. What are our goals for the work? 4. How do we evaluate the effect of patient involvement? 5. How do we provide feedback to patient / close relatives? Current state, februar 2018 About 40 people Ages 28-82 years About one third men and two thirds of women Represents different diagnoses: for example cancer, mental illness, rheumatic diseases, heart disease, stroke Seniors Relatives 6
Challenges We are getting more inquiries We need more people who want to be part of the live library We also need to inform more about the possibility to lend a person We have to work with evaluation both for clinics and people from the library 7