Läkemedelsverkets Farmakovigilansdag

Transkript

1 Swedish Medical Products Agency s Patient- and Consumer Advisory Board Brita Sjöström May 29, 2018 Patientrådet@mpa.se The vision of the Swedish Medical Products Agency s Patient- and Consumer Advisory Board The vision is to, based on MPA s goal and patients and consumers needs, in collaboration be a leading power in benefit for increased health MPA also wants to include disabled persons as well as social care organizations, besides patients and consumers den information som fanns tillgänglig vid presentationstillfället. 1

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3 Patient organisations represented in the advisory board Small and large organisations by means of number of participants in the respective organization From different parts of Sweden Diversity (disorders, age etc.) The present participants (cont) Astma-Allergi förbundet Barnplantorna Föreningen för de Neurosedynskadade HIV-Sverige Tarm-uro och Stomiförbundet (ILCO) Mun- och halscancerförbundet Nationell Samverkan för Psykisk Hälsa (NSPH) Prostatacancerförbundet Reumatikerförbundet Riksförbundet HjärtLung Sköldkörtelförbundet Sveriges pensionärers förbund (SPF Seniorer) Svenska Diabetesförbundet Synskadades Riksförbund (SRF) Willis-Ekbom Disease (WED) (även kallad Restless Legs Syndrom, RLS) Förbundet den information som fanns tillgänglig vid presentationstillfället. 3

4 Internal reference group with coworkers representing different parts of MPA Participates as experts at the meetings Continuous learning of coworkwers at MPA Each member in the Advisory Board has a specific representative at MPA as a contact person Creates the content of the agenda for the meetings Together with representatives from the Patient- and Consumer Advisory Board Meetings with MPA s Patient- and Consumer Advisory Board Two meetings annually Workshops Active dialogue not a monologue Director-General participates and attends the meetings Work according to the European code of conduct den information som fanns tillgänglig vid presentationstillfället. 4

5 The European code of conduct - a tool which can be used as a support in the collaboration with the patients and consumers to achieve a perspective on the degree of involvement Additional collaborations in the area: Within European Medicines Agency Network of Swedish authorities within health care Authority Patient Organisation Network den information som fanns tillgänglig vid presentationstillfället. 5

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7 Additional collaborations in the area (cont) Network of Swedish authorities within health care Authority Patient Organisation Network Network of Swedish authorities within health care Authority Patient Organisation Network (cont) The purpose of this network is to exchange information and experience regarding collaboration and interaction with patient- and consumer organisations Develop a common education for the network as well as patient and consumer organisations, which will take place on a regular basis den information som fanns tillgänglig vid presentationstillfället. 7

8 Thank you for your attention! den information som fanns tillgänglig vid presentationstillfället. 8