Hanna Ber(lsdo-er Rosqvist*, Kris(na Hellberg & Ann Simmeborn Fleischer hanna.ber(lsdo-er.rosqvist@umu.se h-p://

Transkript

1 Narrating Neuro in Swedish research. Exploring discourses of autism within Swedish social science and humanities Hanna Ber(lsdo-er Rosqvist*, Kris(na Hellberg & Ann Simmeborn Fleischer h-p:// (sök på Hanna Ber(lsdo-er Rosqvist)

2 Presentation (Hanna) Sociologi Socialt arbete Genusvetenskap&sexualitetsforskning Funk(onshinderforskning ( cri(cal au(sm studies ) Just nu i denna presenta(on: kunskapssociolog

3 Bakgrund. Ett första utkast till Neurocultural studies. Teoretiska begrepp och betydelsen av att undersöka begreppsanvändning Makt: tolkningsföreträde (vems/vilkas syn på vad som är verkligt och sant som dominerar i olika sammanhang) Diskurs (ex: föreställningar om vad au(sm är) Subjekt (ex: neurotypiker/normal Tills Vidare, au(st/aspergare, person med au(sm)

4 Funktionshinder/nedsättning: Sociala versus medicinska modellen Medicinska modellen - störning/brist.. - fokus: det individuella - > träning / bota / anpassa de enskilda Sociala modellen - social konstruk(on av funk(onshinder - funk(onsnedsä-ning (impairment) g vs funk(onshinder (disability) - fokus: strukturer, hinder - > kri(serar sociala normer/samhälle/diskriminering Hanna Ber(lsdo-er Rosqvist, hanna.ber(lsdo-er.rosqvist@umu.se 4

5 Introducing Critical Autism Studies Building upon the social model of disability People with au(sm s own voices (rather than professionals and parents/care takers) Neurodiversity (au(sm as neuro- difference rather than a neuro- deficit a strength model of au(sm rather than a deficit model of au(sm ) a cri(cal perspec(ve on the neurotypical (NT) and neuronorma(vity Hanna Ber(lsdo-er Rosqvist, Umeå University 5

6 Olika perspektiv Anpassning/normalisering på vems villkor? (vem formulerar problemet?) Normkri(k (vända blicken mot normer ) Hanna Ber(lsdo-er Rosqvist, hanna.ber(lsdo-er.rosqvist@umu.se 6

7 Exempel: Sociala berättelser: normalisering och motstånd h-p:// SdN3I1Pc

8 Comments in youtube: 1) Who told Stewart that he should spend (me with other people? 2) This of course assumes that the child with AS actually has any friends. I certainly didn't un(l I was 12. 3) Or I could mul(task and play basketball video games with my friend

9 fallet NPF i svensk humsam-forskning Olika diskurser inom forskningen om.. Avgränsningar - forskning - svensk forskning - NPF i svensk humsam- forskning: humsam, tvärvetenskaplighet vs resten Gränsytor/överlappningar - inom NPF (adhd/add och au(sm/asperger) - NPF versus behov av särskilt stöd - NPF och andra diagnoser/ samsjuklighet

10 Metod & Material Sökningar: tre forskningsdatabaser (Web of Science, Eric & Scopus Svensk affilia(on, ar(cles/reviews Web of science- materialet (Hannas del) 1) sökord: au(sm, sökningar mellan , sökträffar:602 (1980- mars 2014) 2) sökord: adhd, sökningar mellan , sökträffar: 384 (1994- mars 2014) 3) sökord: Asperger, sökningar mellan , sökträffar: 197 ( mars) Web of sciences- kategorisering: Research Areas

11 Urval: NPF i svensk humsam-forskning 5 main research discourses of NPF: Psychology 45+ Neurosciences&neurology 45+ Psychiatry 45+ Gene(cs&heredity 45+ Pediatrics 45+ Educa(on& educa(onal research 45+

12 Second main research discourses of NPF Science & Technology - Other Topics 45 Biochemistry & Biology 42 Behavioral Sciences 35 Rehabilita(on 17 Den(stry 13

13 Third main research discourses of NPF Audiology & Speech- Language Pathology 9 Public, Environmental & Occupa(onal Health 8 Medicine, General & Internal 7 Criminology & Penology 6 Health Care Sciences & Services 6 Computer Science 5 Environmental Sciences & Ecology 5 Government & Law 5 Nursing 5 Ophthalmology 5 Substance Abuse 5

14 Fourth main research discourse of NPF Chemistry 4 Endocrinology & Metabolism 4 (Läkar(dningen 4) History & Philosophy of Science 3 Linguis(cs 3 Allergy 2 Endocrinology & Metabolism 2 Family Studies 2 Immunology 2 Ophthalmology 2 Otorhinolaryngology 2 Pharmacology & Pharmacy 2 Surgery 2

15 Minor research discourses of NPF Anthropology 1 Communica(on 1 Infec(ous Diseases; Microbiology 1 Life Sciences & Biomedicine - Other Topics 1 Obstetrics & Gynecology; Reproduc(ve Biology 1 Orthopedics 1 Sociology 1 Research & Experimental Medicine 1

16 One of the main research discourses of NPF: Hegemonic vs counter-hegemonic educational discourse: NPF vs special needs Hegemonic educa(onal discourse: NPF (NPF=developmental disorder) - Exploring: Au(sm+prevalence rates, Au(sm+gene(cs, Concept of the au(s(c syndrome/symptom profile/diagnosis, Au(sm+ Sensory difference/sensory abnormali(es, Au(sm+ different visual percep(on, Au(sm+ deficient social percep(on, Au(sm+ minor physical anomalies, Au(sm+ emo(onal well- being/ social func(oning/cogni(ve- prac(cal skills, Au(sm+Problem behaviours, NPF+ neuropsychological deficits, Au(sm+ Neuropsychiatric aspects before and axer epilepsy surgery, Au(sm+ Interven(on+ greater generaliza(on, NPF+language impairment/verbal ability/social communica(on deficits, NPF+Co- existence of disorders/comorbidity, Au(sm+Gender, Au(sm + Race, Au(sm+economic impact, Au(sm+ families Counter- hegemonic educa(onal discourse: children with special needs - Exploring: Working memory training

17 Second main research discourses of NPF: Rehabilitation Explores: - Needs and support - adults diagnos(c experience - Au(sm+ social/poli(cal spaces+iden((es - Au(sm+Joking+ social iden((es - Improve sibling rela(onships/interven(on+ siblings needs - ADHD+everyday ac(vi(es - Self- concept in children with a-en(on deficits

18 Third main research discourses of NPF Criminology & Penology: explores Violent offenders + psychiatric morbidity (incl Asperger syndrome), Adhd+ alcohol/criminality Government & Law: explores NPF+criminality+ comorbidity

19 Fourth main research discourse of NPF History & Philosophy of Science: explores 1) the vaccine market: MMR Vaccine/Au(sm debate, 2) Au(sm+ Moral philosophy Linguis(cs: explores 1) the rela(onship between au(sm- spectrum traits and humor, 2) linguis(c meaning: higher- order thoughts/ capacity of thinking about thoughts + au(sm Family Studies: explores ADHD+ parents experiences

20 Minor research discourses of NPF Anthropology: explores Height and weight of children with different ID (among them au(sm) Communica(on: explores Asperger syndrome vs high- func(oning au(sm: differences in language and pragma(c func(ons Sociology (sociology of scien(fic knowledge): explores controversy over MMR vaccina(on and au(sm)